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International Palliative Care Family Carer Research Collaboration (IPCFRC)

Despite a World Health Organization recommendation that family carers of people with life-limiting illness should be offered optimal support from health and social care professionals, there is a shortage of evidence-based strategies on the best ways to provide that support. Research funding in this area is limited, as are the number of researchers who are focused on family carer support in palliative care.

The IPCFRC was established in 2006 to promote research into evidence-based support for family carers of palliative care patients by fostering interdisciplinary and international research, establishing international partnerships and promoting information exchange.

Membership of the IPCFRC is free and is open to individuals and organisations around the world. Members are able to stay informed of sector news via our enewsletter. Click here to sign up.

Our Values

  • collaboration and innovation
  • knowledge influencing practice
  • accountability and transparency
  • sustainability
  • social, ethical and cultural responsibility
  • effective communication
  • recognition of achievement.

Our Strategic Outcomes

  • communicate opportunities for research funding and conferences
  • foster opportunities for international research partnerships
  • increase membership
  • maintain a database of family carer publications and resources
  • seek funding to support IPCRFC administration costs.

Our Collaborators and Governance 

The IPCFRC operates under the auspices of the European Association of Palliative Care and welcomes formal collaborations with institutions from around the world, and financial contributions to assist in its mission.

The IPCFRC would like to formally acknowledge the financial and/or in-kind assistance of the following institutions:

  • The Centre for Palliative Care, St Vincent's Hospital Melbourne and The University of Melbourne (Australia)
  • St Christopher's Hospice (United Kingdom) 
  • International Observatory on End of Life Care, Lancaster University (United Kingdom).

Our Executive Committee 

The Executive Committee’s role is to oversee the strategic direction of the IPCFRC and implement an operational plan.

GRANDE, Gunn
Professor of Palliative Care
The University of Manchester, UK

ALVARIZA (nee Henriksson), Anette
Specialist Nurse in Cancer Care
Ersta Sköndal University College, Sweden

HUDSON, Peter (Chair)
Director, Centre for Palliative Care
St Vincent's Hospital & The University of Melbourne, Australia

KUTNER, Jean
Chief Medical Officer, University of Colorado Hospital;
Professor of Medicine; Associate Dean for Clinical Affairs
University of Colorado School of Medicine, USA

STAJDUHAR, Kelli
Professor, School of Nursing and Centre on Aging;
Associate Director, Research and Scholarship;
Research Scientist, End of Life Program, Fraser Health Authority
University of Victoria, Canada

TANG, Siew Tzuh
Professor, School of Nursing
Chang Gung University, Taiwan

Ex Officio

PAYNE, Sheila
Co-Director of the International Observatory on End of Life Care, Division of Health Research,
Faculty of Health and Medicine, Furness College
Lancaster University, UK

Our Advocates

The advocates’ role is to promote IPCFRC in their region and make recommendations to the Executive Committee.

FERRELL, Betty
Director and Professor, Nursing Research and Education
City of Hope, USA

HANSON, Elizabeth
Professor, Department of Health & Caring Sciences
Linnaeus University (LU), Sweden

HARDING, Richard
Reader in Palliative Care, King's College London
Faculty of Life Sciences and Medicine; Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, UK

PARKER, Deborah
Professor and Director, Centre for Applied Nursing Research
University of Western Sydney, Australia

Contact Us

International Palliative Care Family-Carer Research Collaboration (IPCFRC)
c/o Centre for Palliative Care
St Vincent's Hospital
PO Box 2900
FITZROY, VICTORIA, 3065
AUSTRALIA

t: +61 3 9416 0000
f: +61 3 9231 1202
e: centre.palliativecare@svha.org.au

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