Despite a World Health Organization recommendation that family carers of people with life-limiting illness should be offered optimal support from health and social care professionals, there is a shortage of evidence-based strategies on the best ways to provide that support. Research funding in this area is limited, as are the number of researchers who are focused on family carer support in palliative care.
The IPCFRC was established in 2006 to promote research into evidence-based support for family carers of palliative care patients by fostering interdisciplinary and international research, establishing international partnerships and promoting information exchange.
The IPCFRC was instrumental in the inception of the EAPC family carer taskforce (2010), and in 2019 it was awarded status as an EAPC Reference Group.
Membership of the IPCFRC is free and is open to individuals and organisations around the world. Members are able to stay informed of sector news via our enewsletter. Click here to sign up.
- Collaboration and innovation
- Knowledge influencing practice
- Accountability and transparency
- Social, ethical and cultural responsibility
- Effective communication
- Recognition of achievement.
Our Strategic Outcomes
- Communicate opportunities for research funding and conferences
- Foster opportunities for international research partnerships
- Increase membership
- Maintain a database of family carer publications and resources
- Seek funding to support IPCRFC administration costs.
Our Collaborators and Governance
The IPCFRC operates under the auspices of the European Association of Palliative Care and welcomes formal collaborations with institutions from around the world, and financial contributions to assist in its mission.
The IPCFRC would like to formally acknowledge the financial and/or in-kind assistance of the following institutions:
- The Centre for Palliative Care, St Vincent's Hospital Melbourne and The University of Melbourne (Australia)
- St Christopher's Hospice (United Kingdom)
- International Observatory on End of Life Care, Lancaster University (United Kingdom).
Our Executive Committee
The Executive Committee’s role is to oversee the strategic direction of the IPCFRC and implement an operational plan.
HUDSON, Peter (Chair)
Director, Centre for Palliative Care
St Vincent's Hospital & The University of Melbourne, Australia
GRANDE, Gunn (Co-Chair)
Professor of Palliative Care
The University of Manchester, UK
Professor in Palliative Care, PhD, Lecturer, RN
The Department of Health Care Sciences, Ersta Sköndal Bräcke University College;
Care Development Manager
Palliative Care Unit, Capio, Dalen Hospital
Chief Medical Officer, University of Colorado Hospital;
Professor of Medicine; Associate Dean for Clinical Affairs
University of Colorado School of Medicine, USA
Professor, School of Nursing and Centre on Aging;
Associate Director, Research and Scholarship;
Research Scientist, End of Life Program, Fraser Health Authority
University of Victoria, Canada
TANG, Siew Tzuh
Professor, School of Nursing
Chang Gung University, Taiwan
Co-Director of the International Observatory on End of Life Care, Division of Health Research,
Faculty of Health and Medicine, Furness College
Lancaster University, UK
The advocates’ role is to promote IPCFRC in their region and make recommendations to the Executive Committee.
Director and Professor, Nursing Research and Education
City of Hope, USA
Reader in Palliative Care, King's College London
Faculty of Life Sciences and Medicine; Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, UK
Professor and Director, Centre for Applied Nursing Research
University of Western Sydney, Australia
Director, Center for Palliative Care
Associate Professor of End of Life Research, Department of Public and Occupational Health
VUMC, Amsterdam, Netherlands
Professor/ Nurse, Institute of Health and Care Sciences
University of Gothenburg, Sweden
DE VLEMINCK, Aline
Senior Researcher, End of Life Care Research Group
Vrije Universiteit Brussel (VUB) & Ghent University, Belgium
Research Lead, Marie Curie Hospice, Glasgow
Honorary Senior Lecturer, School of Medicine, Nursing and Healthcare, University of Glasgow
UK & Scotland
DIONNE-ODOM, J. Nicholas
Assistant Professor of Nursing, School of Nursing
The University of Alabama at Birmingham (UAB);
Co-Director, Caregiver and Bereavement Support Services,
UAB Center for Palliative and Supportive Care
International Palliative Care Family-Carer Research Collaboration (IPCFRC)
c/o Centre for Palliative Care
St Vincent's Hospital
PO Box 2900
FITZROY, VICTORIA, 3065
t: +61 3 9416 0000
f: +61 3 9231 1202